Saturday, November 7, 2009

A Lucy Update - 14 months










Life is good!! God is good!!


We have so much to be thankful for! Lucia Grace is doing great, I'm sorry it's taken so long for a good update on her health, growth, development, etc. We have been busy busy busy since she's taken off walking & enjoying trips to the park, visits with cousins and anything where she can walk around exploring!


Here's the abreviated update --

We had our first bout of illness in late Sept/early Oct with what seemed like a viral bug but lasted so long it may have been the flu or a secondary infection of some kind... Lucy was the first to catch it, her illness started with 12 hours of pinkeye followed by a week of significant congestion, then about 3 days of low grade fever (100.4-100.9), and then a week or so of a productive (and worrysome) cough. Throughout this, Dr. Ricker tried different courses of treatment - starting with Keflex (an antibiotic) for 10 days (although we ended up cutting it short by a few days to switch meds). He chose Keflex because when Lucy has her quarterly throat swabs at the CF clinic, the only thing she's been positive for is Staph Aureus & they felt if she was congested it's most likely a build up of that bacteria so they treat it specifically. When that didn't make much positive impact (after a couple visits to Dr. Ricker's office), he changed her to Septra... unfortunately again, still not much of an impact. The positive thing after the first abx Keflex was that her follow up throat swab came back perfectly clear, so even though she was still sick with some bug, she did not have an further staph aureus. Once we were over 2 weeks into the bug & still with a nasty cough, Dr. Ricker placed Lucy on Prednisone for 4 days (15mg - a pretty big dose for a 24 lb kiddo). The first night on Prednisone was absolutely hillarious! Lucy was bouncing off the walls - completely revved up & ready to run! I wouldn't normally give that med in the evening, but that's when we received it from the pharmacy & I wanted to get it started. Luckily, after the completion of the steroid treatment, the productive cough subsided, Lucy's bit of weight loss slowed down & she began the road to recovery. She's done fabulously since then, picking right back up with her weight, sounding a ton better with just an occasional dry cough & her activity level is constantly increasing!
Lucy's favorite things these days include balls - any size, shape or color, her cousin Julia - she's absolutely fascinated by big kids, Thomas the Cat - her best bud, and her new Ladybug boots from Grandma A! She would much rather prefer being outside to in, she's been like this since she was about a week old. We recently hired a friend to continue the railing on our front porch so it functions like a giant playpen now with a safe outdoor place for Lucy to play - it's wonderful having a covered place for her to use riding/push toys & kick her soccerball around.
I've been lucky enough to work the absolute bare minimum over the past few months. The NICU has been unusually slow for a long time & as a result I've taken many days off as low census time. I am so thankful that we've been able to live frugally & make this work - I treasure this time with Miss Lucia. Randy is such a hard & dedicated worker. He has done a wonderful job managing & growing Sotto Voce, we look forward to this Christmas season & hope that retailers nationwide are able to grow amidst the tough economic times.
Best get back to my Lucy bug! Love & blessings to all!





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